Author: Amitha Kalaichandran

Glimpsing Our Own Health Secrets: The Coming Revolution in Health-Care Transparency

It was a random flip through an old family binder that changed the course of Selina Brudnicki’s career. Brudnicki’s late mother had been diagnosed with breast cancer eight years earlier. A few months after her mastectomy, she complained to her doctors of new pain—a symptom that Brudnicki, a Program Lead of Digital Patient Experience based in Toronto, had assumed was being properly investigated. Brudnicki’s mother passed away of metastatic breast cancer shortly thereafter. It was in 2015, three years after her mother’s death, that Brudnicki came across that binder, which was tucked away with her mother’s belongings. There were medical test results, pathology and imaging reports, and a few oncologist notes. She also found a note her mother had written herself, commenting on a doctor’s report. It read: “[The doctor’s] report does not seem correct.  I always mention ‘pain’ not discomfort. I kept complaining about a new pain.” “While there are never guarantees, I always wonder: If [my mother] had access to her complete medical records and notes, would she have realized [sooner] that she …